FIVE-year-old Frank Howard has a rare condition called Jouvert Syndrome, which is similar to Cerebral Palsey.

ON-THE-MOVE: Frank Howard, 5, will be able to move independently following a Lions Club donation of funds for a walking frame.

ON-THE-MOVE: Frank Howard, 5, will be able to move independently following a Lions Club donation of funds for a walking frame.

FIVE-year-old Frank Howard has a rare condition called Jouvert Syndrome, which is similar to Cerebral Palsey.

It has meant a lifetime of specialist appointments and daily obstacles for him and his parents, Cohuna residents Travis and Michelle.

Mobility is one of those obstacles - a serious one given he starts at Echuca Specialist School next year.

But thanks to a generous donation from the Lions Club of Cohuna, Frank will now be able to attend school with significantly less difficulty.

The Lions Club have donated $1,205 to the family, which will pay for a custom-made walking frame for Frank. 

"Frank currently uses one on-loan ... which he's almost outgrown and they don't have another one in stock," Mrs Howard said.

Mrs Howard said they originally approached the club for assistance in paying for some of the walker, but she was astonished when they offered more.

"I'd asked for about $1,000 but they came to the door and said they would pay for all of it," she said.

The difference the walking-frame will make is immeasurable, both to Frank's parents and his own quality of life.

"Even to be able to walk from the car to the school with the other kids, or going and collecting the mail or going to the supermarket - he's never been able to do that," Mrs Howard said.

The Howards haven't approached a service club or charity for assistance before, but between Frank and his older brother Lenny, who has autism, things were getting difficult. 

"We usually use government funds but it only covers so much," Mrs Howard said.

With the roll-out of the National Disability Insurance Scheme still underway, the Howards face uncertainty with regards to how they will continue to care for the family, making the assistance from the Lions Club very welcome.

"When a wheelchair costs $10,000, it's a lot [to pay for]," Mrs Howard said.

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